Tuesday, August 26, 2008
August 26, 2008 - 38 Weeks
Well, life is roller coaster for me lately. The transition to working two gigs has not been an easy one and the change in seasons is also very trying. You see, Alex and I always loved autumn. The cooler weather, changing colors and falling leaves always signaled the coming of Alex's birthday. There will be no birthday party this year with my beautiful boy. I know this and absolutely HATE it.
Zoe has been asking about her brother ALOT these days. Just this morning she asked me, "Mom, where's Alex?" To which I had to reply, "Alex is dead baby." And Steve added, "He is not here, Zoe."
On our last camping trip she and I had the following conversation:
Z-Mommie, Alex come back like Nonnie?
G- No baby, Alex is not coming back.
Z-Alex has a bump, Alex has a bump inside his head?
G-Yes, baby.
Z-Alex need a band aid!
G-No baby, there is no band Aid for Alex's bump. We tried very hard to find one. It is very sad that Alex is not here. We miss him very much.
On most every other front, Zoe is doing fantastically! She has really blossomed over the summer and her smile has returned.
I know this post is short, but you all are probably grateful for that. I will do my best to keep you more up to date on our status. Just know that rough waters are ahead for us from this point on.
Take care and take a moment to appreciate the ones you love in your life today. It is worth the effort!
God bless,
G
Saturday, July 26, 2008
July 25, 2008 - The Circle of Life
Good Morning All. I am writing to you from a place of peace and tranquility. Life has worked some incredible miracles for me recently and I am so excited to share them with you. First of all, a dear friend and wife to one of Alex's best friends has organized an incredible group of women to participate in the East Boulder Relay for Life benefiting the American Cancer Society. I have been invited to be a member of the "Sleepless Beauties" team and next Friday night we will walk to honor Alex, the organizer's mother (who is a cancer survivor) and another member's husband who is winning the fight against breast cancer. There is just too much cancer in this world and I am honored to participate in this event. Thea (the organizer) unbeknownst to me or Steve asked all their guest at her husband's birthday party to purchase (and decorate) a luminaria to honor Alex at this event. If you would like to purchase a luminaria to honor Alex or someone you know and love please go to www.eastboulderrelay.com . They are $10 each and will light our path as we walk through the night next Friday.
Next I want to tell you about our last camping trip. I was so excited to have three other families join us for camping at Mount Princeton last weekend. While I had a blast, the best time was watching Zoe following her friends in the adventures of camping. She was so proud of herself for climbing on the rocks, jumping off rocks, walking over narrow bridges (which I could not do), and wading in the creek. She hiked with us and was always saying "Look at me! Look at me!" when she tried something new. It made my heart sing to see her so joyful. She really loved being around all of her friends.
One family had a son named Alex. When I told Zoe the list of kids that were going to be there and came to "Alex"; her face lit up and she was so excited! "Alex is going camping with us!!!" I knew I had to do some quick damage control and said "no, baby, not our Alex, Jackson's Alex". She took my words in and became very quiet and walked away. She never mentioned it again. It was strange to be calling Alex's name again and when I asked Steve what he thought about saying his name he said "it felt good to speak his name again". When he said that I realized he was right! Can you believe that just speaking his name could bring joy?
So last week I started a part time gig with Red House Staging. I will be doing the administrative and bookkeeping work for this home staging company that operates out of Washington DC. The owner, Lyric, is awesome and about to deliver her second child in early August. So far this week we have been able to set up her accounting and I even got an old debt collected for her. She and I should make a great team!
On Friday, I also accepted an administrator position with the Kabbalah Experience. This is a religious studies, non denominational, non profit. It is a small organization and my work will be as their "face" or administrator. I have to tell you this story. So on Tuesday, I was speaking to my therapist and she started talking about "compassion for self, so one can be compassionate to others" as a difficult concept for most humans to comprehend let alone accomplish. I was confused and asked, "But don't you think I am compassionate?" She said something to the effect that "while I am compassionate to others; I do not honor myself as worthy and deserving of compassion so that compassion is limited". I still don't get it, but anyway the night before the interview I asked Steve to tell my about Kabbalah and Jewish Mysticism. He asked me to look it up on wikipedia then come back to him. So I did. While I was reading I came across this:
"Righteous" humans (Tzadikim) ascend these ethical qualities of the Ten Sefirot by doing righteous actions. If there were no "Righteous" humans, the blessings of God would become completely hidden, and creation would cease to exist. While real human actions are the "Foundation" (Yesod) of this universe (Malchut), these actions must accompany the conscious intention of compassion. Compassionate actions are often impossible without "Faith" (Emunah), meaning to trust that God always supports compassionate actions even when God seems hidden. Ultimately, it is necessary to show compassion toward oneself too in order to share compassion toward others. This "selfish" enjoyment of God's blessings but only if in order to empower oneself to assist others, is an important aspect of "Restriction", and is considered a kind of golden mean in Kabbalah, corresponding to the Sefirah of "Adornment" (Tiferet) being part of the "Middle Column".
This was the day after my therapy session and I started to see myself as a thread being woven into a grand fabric. The next day the interview went very well and yesterday I got the call that they want me and are very excited to begin working with me. Last night I asked Steve "don't you think it is interesting that in one week I got two jobs?" He responded, "Yes and not just any two jobs but jobs that meet all of your expectations and needs." We continued talking and it came out that both my desire to be a part of a creative environment and a spiritual one has been fulfilled! Do you see this? I am now headed down a path of creativity, individuality, spirituality, learning, and self growth. On the Kabbalah Experience's website their header reads "Reflecting the Authentic Self". In the interview, they said that I would be assisting people to improve and enhance their lives. That this organization's goal is to actually help change the world (or people in it) into self-actualized human beings. I am so jazzed about this! And I get tingly and almost creeped out when I realize that this is really all a part of my soul's journey. Can you say, WOW!!!Okay, so I also want to share with you an experience I had last week. Zoe was outside and she was asked "to help daddy with the hose". When she completed this task, I said "Zoe that was so good, you are such a good helper!" She kinda stopped and thought about my words and then said "thank you mommy", and came and gave me a huge hug and said "I love you". When she paused I swear I saw every cell of her being swell while absorbing the praise she had been given. At dinner I told Steve about my observation and then said "you know instead of taking in and absorbing praise, I deflect it. But criticise me or even say something that I can construe into criticism and I take that in deep to the soul level". He acknowledged that I was correct and that it was a "learned technique". Then I said, "I want to learn by Zoe's example, how to take in the praise and let the criticism drop." It is so grand to have Zoe as a teacher in these lessons. I hope you are able to learn from the children in your lives as well. They have so much to teach us!
So the night before my therapy session, I was putting ZG to bed and my eyes locked on Alex's leg braces in the shoe organizer. I had such a strong desire to go and hold those braces. I had to fight this impulse because I knew it would upset Zoe who was on the verge of sleep. I had planned to take them to my counseling session but had to rush out the door. So next week, I plan to take some of Alex's clothes and definitely those braces and just hold them for the first time in a long time. I know I need to do that. I'll let you know how it turns out.
Okay, that's everything, I think. I will keep you updated!
Much love to you and yours!
God bless!
G
Wednesday, July 09, 2008
Wednesday, July 9, 2008 - 31 weeks
Hi All. Summer is flying by for us. We just returned from a visit to my hometown. We had a great visit and Zoe really enjoyed being with her extended family! We spent most of our time at the Fat Boys Ranch near Lake Tenkiller. Lake livin' is grand! We had such a great time on the water. We were able to see fireworks from the boat. Zoe got to feed fish and float in the water. She even drove a Jeep! Of course it was her cousin's mini-Jeep but she did not care. She really enjoyed having a big boy to play with all the time. Evan also seemed to enjoy the company as well. It's visits like this one that make you want to win the lottery and buy a plane so we can be with family more often.
I had a few moments of melancholy on this trip too. My nephew has grown so much since I saw him in December. It made me wonder about Alex. What would he look like now if he had been tumor free? How great it would be to see him enjoying his family and the new experiences! When we got home, I felt like I had left him behind. I had that same experience in a dream that night and it was so horrible that I woke myself up and stayed up. Then I found a video of one of Alex's physical therapy sessions. After opening and closing it a few times, I watched the video. Alex was so sick but he's laughing and working hard. It was so great to see him move and smile and laugh. It makes my body ache to hold him though.
So about three weeks ago, I started acupuncture to help me with my constant back pain and overall "well being". The first session had a huge impact on my system. So much so that I bought a pregnancy test. Of course, the results were negative. But for the day and a half that I thought I was pregnant, I was on cloud nine. I so want to meet another one of our children. We have great children and I adore being "mother" to them. It seems to be my calling. Steve is not on the same page as I am on this topic so it is a good thing that things are back to normal. We had decided to stop all conversations for six months a few months ago. I was driving us both insane. Then Steve came to me and said that if Zoe said that she wanted a sister or brother then the discussion could be rekindled (so to speak). Well, I knew not to say anything to Zoe because Steve is way to smart for that to fly! A few weeks later, we were all watching television and I was knitting a baby blanket for our neighbors; Zoe saw a baby on tv and said "I want a baby." I then said, "Zoe what do you want?" And she repeated, "I want a baby." I then asked "Dad, did you hear that?" to which he replied, "Yes, but that does not count!"
This exact conversation happened again a few weeks ago and Steve was right there, scowling at me. I have no idea what the universe wants from me/us at this point. I just know that if it is meant to be it will be and I am not going to worry about it. I just really loved that feeling and have since tried to find it everyday. There is an author out there that talks about "having fun everyday" as one of several steps to a good life. I know that when I laugh and play, I feel so much better. Zoe and I have come up with this great way to swing together. Almost everyday since we have had our "swing date" and she just "wee"s and smiles the whole time which makes me respond in the same way. It is great! I highly recommend that each of you set aside five, ten, sixty minutes a day to just have some good ole fun. Try dancing, singing, walking like an Egyptian! It really helps change your day!
Okay, well that is a good note to leave on. I hope you are all having a wonderful summer. I hope you find a bit of joy in every day!
Much love!
G
Wednesday, June 25, 2008
Wednesday, June 25, 2008 - Update
Hi All, I apologize for the reduced number of postings. Summer has been quite busy. Can anyone believe we are almost done with June and I have actually seen Christmas decorations in two stores. Unfortunately, Father's Day coupled with the brain surgery of a close relative sent Steve into a funky spiral. He was able to come out of it on our camping trip this past weekend. Also, the surgery was a success and the prognosis is very good! Thank you all for your prayers and support.
Our camping trip was really great. Steve took Friday off and we were able to head out as soon as we picked up Zoe from school. Friday night was mostly just spent setting up and getting to know the terrain. Then on Saturday, we headed out for a hike that ended up being over six miles. Zoe was a real trooper on the hike and having a kiddo backpack was a real life saver. At one point, when she had worn Steve out, I ended up putting her on my shoulders and carrying her up the mountain! The reward was a beautiful rest at some spectacular falls/river. The water was ice cold and the sound of the river was mesmerizing to me (and Zoe). When we finally got back to our tent, we all took a great, long nap! We all slept really well up there. I was surprised. I love my ThermaRest air mattress and down sleeping bag. Our tent was great too! On Sunday we took a two hour horse ride. Zoe was great for the first 15 minutes then she was very uncomfortable and distressed by her constantly slipping cowboy boots! Once we got that situation under control, she had a great time. Of course just about an hour and a half into the ride, it starts to rain. Mountain rain is very uncomfortable on top of a horse with a screaming three year old and no rain gear. I do NOT recommend it! Luckily we got to the stables quickly and Zoe was ready to go again!
So I'm okay but I am freaking out on how to make ends meet. I really need to return to work and bring in some income, but that thought does not make my heart sing! It actually makes it sink. I really want to honor Alex's life with my time, attention and energy. So far the most we have done is the Steps N Strides Walk and in August, I will participate in the "Relay for Life" to benefit the American Cancer Society. I know I need to give myself time, but I don't want to lose our house in the process of our grief! This sucks on so many levels for so many people and I'm afraid the end is not in sight.
So did you know that my brother is in Afghanistan? He is part of the 101st Airborne and he is the pilot of a Black Hawk helicopter. His birthday was Saturday and I just missed his phone call this morning. I know many Americans are anxiously awaiting to have their loved ones home. I am most definitely one of them. Joe has a lovely wife, Courtney and an incredible little boy, William. I can't wait to see them all again. You may remember we met for the first time when they came out for Alex's service in December. What was so amazing about that was how quickly and easily it was to be around each other. There was none of that "awkwardness" one would expect when meeting a sibling for the first time in thirty something years.
So the play space is coming along quite nicely. We laid sod down three weeks ago and Zoe's house is mostly complete. I am awaiting the items for her "sensory garden" to come in to finish off the space. Steve still wants to finish the stage as well. So far the favorite item is the water feature. Zoe loves to be naked and splash around. It is almost more of a toddler tub than a water fountain.
I hope you all have a happy holiday.
God Bless!
G
Wednesday, June 11, 2008
Wednesday, June 10, 2008 -Zoe's Questions
Hi all. I want to share a conversation Zoe and I had the other day.
Z - "Mommy, I don't want to watch this show. It's Alex's show."
G- "Yes, it is one of Alex's favorite shows."
Z- "Mommy, Alex come home soon?"
G-"No Zoe, Alex is dead. He can't come home. And that is very sad."
Z- "Alex cross the street?"
G-"No, Alex did not cross the street. Remember, Alex had a bump?"
Z-"Alex bonk his head?"
G-"No Zoe, Alex did not bonk his head. Alex's bump was inside his head." (tears flowing now)
Z-"I kiss it!"
G-"Zoe, that is very sweet. But you can't kiss Alex's bump. It is very sad that Alex is not here. But he loves you very much and will always be with you here (point to her heart)."
Z-silence
G-"Would you like to come outside and see your new playhouse?"
Z-"New playhouse? Oh YES, YES, YES!!!" (runs to back door)
The next day we had almost that exact same conversation again. Zoe really wants to make sense of this and she really, really wants her brother back. She wants to "kiss it and make it better." It is very sweet and very sad.
I have to say that I am doing better. I booked three camping trips for our family this summer. Our July trip we will be accompanied by five other wonderful families, all with young children. I'm so excited. We invested in some new camping gear and can't wait to get to the mountains for some R and R. We never got to take Alex camping. We did do hikes with Alex and several car rides. But it has been over two years since we really spent much time away in the mountains.
In addition to the camping trips, we are planning a trip to my home town for some fun lakeside living!! My family is going to be STUNNED when they see how Zoe has grown. I can't wait to get and give big hugs from them all!
Steve and I have been working hard on the back yard and specifically the play space. We should have it pretty complete within a week or so. We got a great play house kit for Zoe and friends assembled this past Sunday. She is so happy with it! We are in the process now of building a platform for it and painting it. I hope you like the picture!
Okay, I'm going to meet a girlfriend in a few. God bless you all and thank you for your continued support and wonderful comments.
G
Monday, May 26, 2008
Monday May 26, 2008 -My First Memorial Day
Good Morning. So the weekend has been a good one so far. Zoe had a play date with a new friend. He is five years old and they were fast friends at their first meeting a few weeks ago. Zoe absolutely loves following this boy around and playing with him. He is very sweet and just great to ZG. I know it is "co-dependent" of me; but I am happy when she is happy! I think all parents like to see their child(ren) smiling! I know I do!
Saturday, we kicked butt and took names on our front yard!! Our yard has always been an eyesore and on Saturday from dawn til dusk we whipped that puppy into shape! It looks better now than it has the entire six years we have lived here. It is a pleasure now to drive by the house and to open the door to friends. Needless to say, yesterday we were utterly exhausted!
Late yesterday afternoon, we headed up to Erie to be with some dear friends up there. It was a very laid back time and just what the doctor did not order! We were so excited to have ZG asleep before nine o'clock that Steve and I took the opportunity to watch a movie "on demand".
You see, I have fallen in love with Eddie Vedder's song "Hard Sun". I found out yesterday that he wrote and performed this and all of the other original songs for the movie "Into the Wild". So Steve and I watched it last night. It is the story of a young man that travels to Alaska after his college graduation. It turned out to be a VERY intense movie. I was sure I would have nightmares due to the subject matter. I did not have nightmares but I can't get this story out of my mind this morning. I just may watch it again! You see this young man is a "lost son" and during his travels to Alaska he becomes soul-bound to two characters that have each lost a son (via different means). The lessons of karma and "oneness" is profoundly exhibited in this movie and I must say very moving.
So today is Memorial Day. We have decided to update our prayer flags in front of the house today. You might remember last year's "Pavers and Prayers" party; where friends came to the house and made pavers for the play area and prayer flags for the temple chimes. It was a great day for everyone. The prayer flags are supposed to be granted when they fly off the temple chimes. Unfortunately, I used faux twine that is obviously indestructible and the prayers are just getting torn up in the wind. So Steve, Zoe and I will be making new prayers today and attaching those to the temple chimes with real twine.
Another way we will be honoring Alex is by sponsoring a Cambodian boy named Loun through the International Childreach Program. Steve and I just made this decision about five minutes ago but already I can feel my maternal warmth rising and releasing little specks of hope and joy in my body.
I hope today is a good day for you. We have had perfect weather the last two days but today will be cooler and cloudier. I'm glad about that. It seems appropriate. I have never really honored or even thought about anyone much on Memorial Day before. It has always just been a day "off" to me. This year though, everything has changed. I hope to use this day for healing and prayer. I hope to have a few milliseconds (or more) in the moment; enjoying the beauty and preciousness of life and being. I pray you do too.
God Bless.
G
Friday, May 23, 2008
Friday, May 23, 2008 - One Day at a Time
In addition to that struggle, I have not been to exercise class since Monday. During a backward lunge on the step, I heard a loud "pop" and immediately felt pain in my left calf muscle. It was so bad I had to scoot down the stairs to get out of the gym. I did the "R.I.C.E." thing Monday and the pain is greatly decreased but I can still feel the pulled muscle. I plan on cleaning the house today as my workout!
I want to take a moment to say "Happy Birthday" to Evan Winston!!! Evan is such an incredible child and we love him sooooo very much. I can't believe it has been seven years since his birth. Happy Birthday Evan! You are VERY SPECIAL and VERY LOVED!!!!
I would also like to encourage all of you that are in the area to join our family at the Kyle O'Connell Foundation's annual Steps-n-Strides Run/Walk on June 1st. We will be walking to honor Alex along with other families that have dealt with pediatric brain cancer. You can register at www.kyleoc.org !! Hope to see you there!
Finally, I would like to ask for your prayers. A member of our family is having brain surgery today and we are all just reeling!! It seems that we just can't catch a break right now. Please pray for the doctors' steady and skilled hands; the children's peace; the patient's easy and fast recovery; and our family's "break"!! We need one!
This weekend is Memorial Day. We plan to work on the yard and play area over the holiday and try to honor Alex in a very special way. I hope you join me.
God bless!
G
PS- Make it a GREAT day!!!
Friday, May 09, 2008
Friday, May 9, 2008 - Druthers Day
I wish all of the wonderful mother's I know (and the ones I don't) a spectacular Mother's Day. Please be kind to yourself and appreciate the beauty of your children (even if they are no longer children). I know Alex would want you to!
Much love and God Bless!
G
Wednesday, May 07, 2008
Wednesday, May 7, 2008 - Weird Space
Hi all. Zoe's birthday party was a success and if anyone wants some "death sticks" aka: mac 'n cheese on a stick; just let me know. We have tons frozen in the freezer! We also have a good portion of a keg of beer left over, even after lending it out for a neighbor's party. Needless to say, my pants are getting a bit snug! Zoe had fun but only after the party died down a little and she and a few friends headed over to the playground. I think she was overwhelmed by the amount of people. We also think there may be some real emotional baggage for Zoe related to birthday parties, since we had three bday parties to celebrate Alex turning 5 yrs old.
I know ZG misses her sweet brother. Every time she talks to her grandmother, or a departing parent, she says "you come back, okay?" We always are very reassuring that we will be back. The other day, we were in the nursery and Zoe said "Alex come back soon!" I had to reply "no honey, Alex is not coming back" and her light and bright energy changed immediately to an angry and dark mood. It was heart wrenching.
Yesterday marked 22 weeks without the most wonderful, beautiful little boy I have ever known. I miss him so much my body still aches with the pain of it. On Friday night, we decided to have some family time outside. Steve built a fire in the outdoor fireplace and the three of us sat outside. It was great and very lonely at the same time. Alex loved sitting by the fire. He loved helping his dad stoke the fire and build the fire. It was one way we could get him outside when he did not feel good (which was a task toward the end.) We have so many good times around that fireplace. It was very bittersweet. I guess that is how it will always be from now on.
I can't decide what to do with my life when I grow up. I just wish it would come to me with the energy and enthusiasm to make it a reality. I have too many interests and seem completely uninteresting at the same time. I saw so many friends at the bday party that asked "so what's up?" I really had no answer that was of any interest. How do you say, well, I'm just trying to not cry today, to not completely break down and melt into the ground today, to maintain a semblance of normality and acceptance of a life without my son. No one really wants to hear that. I have had friends call and email for lunch and I just do not have the energy to call them back. I am lonely, but don't really know how to be around others right now. It's a whole new world for me but everyone else is living the same existence with the progression of time.
I did think of a great story to share with you all. I finally found a fabulous hairdresser. We met a few years ago and I adore her. At our last appointment she told me about how Alex and I have changed her father's life. You see, he survived the death of his brother, at an early age. It was a tragic accident and was not discussed during his lifetime until she talked him into pulling out the pictures and remembering the precious brother he had. It has brought a lot of healing to this family and I have to think that Alex's spirit made it possible.
Well that is about as upbeat as I can be right now. I am going to have some hot, keg beer!! Come and join me!
Much love and God Bless,
G
Tuesday, April 29, 2008
Tuesday, April 29, 2008 - 21 weeks today
After Linda left, my body immediately fell ill. I was knocked out by a bad cold, sinus infection etc. When I started to feel better, Steve and I worked in the yard the entire weekend. We have started a "rainbow garden" for Alex. As a result of all of the hard work done in the yard, come Monday, I threw out my back buckling ZG into her carseat. So I was down and out for about 2 days, then very tentative with all other activities up until yesterday. I finally got back to my workouts yesterday morning after two weeks. It felt good even though it did almost kill me.
So last Thursday, I had a job interview with three Realtors in the neighborhood. They were looking to hire an assistant. I just found out a couple of hours ago, that they chose someone else for the job. I was a Realtor, when Steve met me, and I loved helping others find their homes. It was a dream job for me. I knew, when I moved, that I did not have the contacts nor the knowledge of the area to become a Realtor here (besides the competition is fierce and the market well-saturated). The assistant job was full-time and I did have some anxiety about the time commitment but really started getting excited about the prospect. So now that I know I did not get this one, I think I will try something else. I have always wanted to start a "home staging" career. You know, making a home appealing to buyers via design. Well, if I can stay on this up swing, I want to put together a brochure, print up some biz cards and start working the market. I love interior design and ,while I don't have a degree, I do have some skill and I feel I could do a great job. So send me some good mojo and the energy to make it happen!!
Another thing that is helping me get out of the funk of the past few weeks is Zoe's bday. Zoe will have her birthday over the weekend and I love throwing parties. So I now have a project that is helping me keep busy and focus on the positive. I just hope the weather holds out for us. It is supposed to snow this Thursday and Friday! I know I am ready for the warmer, Spring like temps of the season!
I also want to thank our friends that have opened their homes and hearts to us over the weekend. You may not know it, but spending time with your families, has really made a huge difference to my emotional state. So thank you!! It was great seeing Zoe play with her new and old friends, and laugh, and be happy. I know she misses her brother so much, and feels very lonely at times; so it is great when she can socialize with other kids. And even better, when Steve and I can have fun too!
Okay, well tonight is the 8th out of 9 parent support group sessions. I really, really don't enjoy these sessions. You see, while I am learning something about grief, I endure hearing about some truly horrific tragedies of the other parents. The only reason I continue to go is because I want to support these mothers (and one father). I truly do care about them and their families. I also get to hear Steve's side of the story and his struggles/opinions during these groups. But, all that said, I won't miss them when they are gone (the sessions, that is, not the people).
Okay, well, I should end this. I want you all to know that your comments really help me through my days. Please keep them coming. Somehow knowing that I am not alone and that our experience is shared with persons, known and unknown, keeps me going. I think of you all often.
God bless,
Love,
G
Friday, April 18, 2008
Friday, April 18, 2008 - New, New Normal
So since Tuesday, Steve, Zoe and I have embarked on another, new, "new normal". For the first time in our lives, we are living as a threesome. I have to say it seems quite strange and very uncomfortable to me. Alex's presence is here but at the same time it is NOT here and we all miss him very, very much.
Yesterday, Steve was asked to speak to his fellow co-workers. His company will be preparing 24,000 gift bags for kids with cancer this year. Steve talked about the first time we received a gift. It was when Alex had just had the brain biopsy and he was in Intensive Care. I will never forget it. I was holding Alex in the rocking chair and the ICU nurse brought in this green piece of luggage resembling a turtle. Inside it were books, games, toys, bubbles, voice recorder and small DVD player. It was an amazing gift. I remember I felt so relieved that someone was thinking of us that knew what we needed even before we knew. I felt that we were not alone in this ordeal and that there is hope. This wonderful gift came from the Gabby Krause Foundation and you can read about Gabby at www.gabbykrausefoundation.org. So it is my wish that each of the 24, 000 gift bags that will be handed out have a similar impact on the children and families receiving them.
So I wanted to tell you all about "thawing". Thawing is a term a father who had lost his child, came up with to describe the grieving process. Until you go through a loss like this it is almost impossible to know what the experience is like. Thawing refers to the process of melting away sadness, despair, and sorrow so that you can get through a certain time period (varies constantly) feeling okay, like you can get out of bed. Then you realize that while you were thawing another layer of your sorrow has reached the surface and you are back in the pits again. Utter despair, angst and sadness consume you. You don't want to move, to talk, to eat, to drink, to breath. But you do and eventually, with help from family, friends, counselors, children, you find yourself back in the "thawing" experience. Unfortunately, you never know how long this will last, so you do your best to enjoy the time and to honor your child while you can. I think we all know our deceased children would never wish us to be in pain and sorrow. Children are all about love and joy and laughter and BUBBLES!!! Bubbles of wisdom that we have forgotten and have to relearn.
So I hope that helps you get some what of an understanding of what this confusing, ever-changing grieving process is like (for me, at least). It truly sucks and I don't recommend it to anyone! So, go enjoy your day. Be in this moment right here, right now. Listen to the far off birds sing their song, the squirrels scampering in the tree limbs, the wind talking through the leaves. This is all that really matters. You, Now, Here!!
God bless,
G
Tuesday, April 15, 2008
Tuesday, April 15, 2008 - 19 weeks without Alex
Hi everyone. This is going to be a downer post so continue reading at your own risk. I'm quite sick and I think it is just from all of the stress/hell I have been through these last few weeks. The past weekend has been a real roller coaster for me as well. You see, Alex and Zoe's school, gave us tickets (thanks to Ms. Grace for asking and everyone involved in that decision) to the annual fundraising event which was a silent auction and casino night combined. We had not planned on going since we had blown our "wad" on the honeymoon. But when I told Steve about getting the free tickets he said he would go. Then on Saturday afternoon, his tune changed and he ended up asking me "why do you want to go so badly?" I thought about it and replied, "Have you noticed how quiet the phone is these days? The only person that called me this week was you and that was yesterday. I miss our friends. I really want to go to see our friends and reconnect with the school. They have been a wonderful source of support for us." With that said, and the tears in my eyes, he conceded to go.
The night was a huge success for both of us too. Steve did very well at the Black Jack tables and I had a lot of laughs with some dear friends old and new. The only problem was that I wore these high (did I say HIGH) heeled shoes and could not find a seat all night. My feet still hurt! After the party, we tried to hook up with our friends, but could not find them and ended up having an incredible dinner at Il Posto. If you have a special occassion and like authentic, fresh Italian food, please consider this place. It is just too good and the staff is very friendly and fun!!
Okay, so you are thinking, she's got sore feet what is so wrong with that, right? Well then came Sunday. On Sunday, I visited hell in the form of a Memorial Service at The Childrens' Hospital. Again, Steve tried to talk me out of going, but I refused (I should have listened this time). So Linda and I went. OMG, torture!!! Absolute TORTURE!!! There were so many families and so many beautiful children that are no longer a part of this reality. As soon as I sat down, I noticed a mom next to me crying and the service had not even started. Then I started looking at the program and reading the words to the poems and songs. AUGHHHH!! I started crying. When the slide show started, Alex's picture was the first one and that was it for me. Stick a poke in me I'm done!! (I know it is "poke a stick in me, I'm done," btw.) Then the mom with her little girl (about 4 or so) saw their baby and the little girl said "there's (name of child)" and the mom acknowledged her as she was weeping. Then the little girl began wailing. Wailing with such pain and sorrow. My heart was breaking all over again, because I wanted to wail right there with her. Her mom carried her out and the wailing continued for a while.
So at some point during the service, they gave the moms a rose and a glass votive holder with a flameless votive in it. All the time I 'm watching these parents come up and get their "prizes" I'm thinking, "so your child dies and you get a flower and a candle, RAW F'ing DEAL!!!" I really wanted to run out and just go but instead we stayed until the end, ate some cake and talked to a parent from the support group. I also got a balloon for Zoe and a glitter wand too. Then we headed home.
When we got home, Steve and Linda started preparing dinner for the evening. We were having some neighbors over to say "good bye" to Linda. Again, it was a fabulous time, but my experience was blackened by the hell of the afternoon. So I drank some wine, listened to the chit chat and did the dishes. Steve built a nice fire in our outdoor fireplace and the fun continued outside. Zoe would not sleep so she ended up outside as well. One funny thing about that- when Zoe saw the moon she said "moon, mommy, moon!" I said, "yes, la bella luna" and she said (for the rest of the night) "that's not a balloon, that's the moon, mommy!" You get it? "la bella luna" sounds like "balloon". Anyway, it was cute.
Then comes Monday!!! Oh geez! Due to our computer crashes, etc. we were only able to get our accounting system up and running on Saturday, thanks to Steve's diligent work. So Monday, I got to enter in every bank transaction for the year 2007. Well, if that was not like walking down memory lane!!! Again, torture. Every McDonald's Happy Meal we got after chemo; every Snooze brunch, every purchase on the Make A Wish trip, every meal at the Red Wagon Grill ( hospital's cafeteria) was relived. I was completely drained by the end of the day. I sat at this computer for over 8 hours yesterday.
Then to top it all off, Linda left this morning. She is going to be missed so much! Toby (her dog) not so much, but he is part of the package and we love him. Roxie is scouring the house trying to find her friend!!! So you can see why my body has decided to let illness take me down, can't you?
Just to polish this off. I want to share a reading from the service. It actually made an impact on me and I want to share it. So here goes!
To Honor You
By Connie Kiefer Boyd
To honor you, I get up everyday and take a breath.
And start another day without you in it.
To honor you, I laugh and love with those who knew your smile and the way your eyes twinkled with mischief and secret knowledge.
To honor you, I take the time to appreciate everyone I love. I know now there is no gaurantee of days or hours spent in their presence.
To honor you, I take chances, say what I feel, hold nothing back, risk making a fool of myself, dance every dance.
You were my light, my heart, my gift of love, from the very highest source. So everyday, I vow to make a difference, share a smile, live, laugh, and love.
Now I live for us both, so all I do, I do to honor you.
God bless!
G
PS- The first pic was taken the Friday before Alex passed at the Make A Wish Holiday Store/Party at TCH. The second and third pics are from Thanksgiving last year and the last one was taken over two weekends ago.
Friday, April 04, 2008
Friday April 4, 2008 - Vacation details
Hi everyone! Well we survived our Honeymoon! It was absolutely FANTASTIC!! The hotel that we stayed at in Mendocino (actually little river) was the location for the movie "Same Time Next Year" with Alan Alda and Ellen Burstyn. I have wonderful memories of watching this movie with my mom during my childhood and it truly is one of my favorites. If you have not seen it and are in the mood for a romantic comedy/drama I highly recommend it!!
After Mendocino, Steve drove me to San Francisco to meet my sister and he headed back North to his college fraternity's charter dinner/weekend. My sister and I had a fabulous time in the big city and we realized the first night that while we have been in the same room over the past 18 months; we rarely had any time to be sisters. It was great to reconnect in such a wonderful spot. We stayed at a nice, European hotel in downtown and on Saturday we went to the Japanese Tea Garden. I have such Spring Fever right now. Everything was so lush and green, as you can see by the pictures I have attached.
Zoe and Linda had a great time and Zoe was okay with our absence until we called and reminded her that we were not there. I have to say though, it was wonderful to come home to her and get the biggest, longest hug ever! She even looks taller and her hair is definitely longer! Somewhere over the break, she started this faux crying thing that is just pathetic and actually kinda funny. She pulls it out over the littlest thing and it just seems so strange to see her like that. So I guess the trip did have some effect on her. Overall, I know she had a great time with all of her friends that made it over and set up play dates with her.
Our next challenge is Linda's departure. After six months she has decided it is time to return to her home. We will miss her so much! She plans on returning later in the year but in the mean time she will be missed!
So I want to tell you about the little, green Buddha in the pictures. Do you remember (did I write about) the Buddhist Monk, Eric that came by the house a while back? Well, after talking to Steve and I, Eric came in to meet Alex. At that encounter, he gave Alex that little Buddha. Alex really was not that impressed with the little Buddha since it did not resemble Spider Man at all, but I made sure we kept it around. Ever since Alex passed, I carry that Buddha with me. It dawned on me at the Japanese Tea Garden to actually put it in some pictures since I saw Alex in every beautiful flower and green grove. So I hope you enjoy the pictures. I just may have to travel the world's botanic gardens and publish a book some day!!
Next time, I want to tell you all about the parent support group "Colors of Healing" that we started a while back at Children's Hospital. Right now is not the time, but I will tell you all later.
I hope your Spring is bringing much beauty to you! God bless!
Love, G
Wednesday, March 26, 2008
Wednesday, March 26, 2008 - Mendocino, CA!!!
I was sad to leave Gaige House and Sonoma yesterday. I was not sure the scenery or accommodations could get much better, but once again I was wrong!!! I am happy to report that Mendocino and the Heritage House are absolutely beautiful. See for yourself!!
I had a dream with Alexander Monday night. Once again, it ended when I thought "if Alex is dead, how is this happening?" But since then, I have seen and felt him on every sunlit leaf and wondrous blue wave of the ocean. I know he has brought us to this place because it is one of his favorites and he wanted to share it with us.
Yesterday, we stopped at a mall on the road. A young teenage man was walking in ahead of us and his dress was not appealing to me and I said to Steve, "I hope Alex doesn't ever dress like that!" I then realized what I had done. It still boggles my mind!
So today we plan to go to the lighthouse and state park down the road. We may go canoeing and or horseback riding too!!
Thank you all for the wonderful postings. I can't believe people still read the blog!
love and God Bless!
G
Monday, March 24, 2008
Monday March 24, 2008 - Honeymooners!!
I have no idea if I mentioned this before, but Steve and I are taking a honeymoon (after 7 years of marriage) in California. We left last Thursday and after 15 hours of travel, we arrived in San Francisco. We spent the evening with Steve's sister and her husband. They took us out and on the town in SF!!! I remember having a great time and twisting my ankle. The details though are kinda fuzzy. The next day we went to China Camp and rested at Weber Point. It was beautiful and so quiet. I loved it. We went on a hike the next day and it was just what the doctor ordered. I also discovered that I like to take nature photo shots. I'm having a blast in this lush landscape that is Northern California.
Long story short, Steve left his wallet on top of the car as we were leaving Weber Point and we went to get a bite about 20 minutes away. This is when he realized the wallet was missing and we headed back to Point. We did a thorough search and just as we started to scour the road, Steve's mom called and said "Did you lose your wallet?" A very kind gentleman (and cute!!) had found Steve's wallet in the middle of the road and called the house! We drove back down and met him. We really wanted to buy him a drink but he had things to do. So I must say, the trip has been very interesting so far.
The next thing to happen was that I double booked our second night in CA. I had us in two hotels and so we missed one night at The Gaige House! We have been here two nights now and will leave tomorrow morning. This place is so incredible. The staff upgraded our room to a Zen suite. It has a "geodome" tub that Steve and I can both fit into; a Zen garden, and one of the most comfortable beds we have ever slept in!! Tomorrow we will head to Mendocino!
So this morning, I was relaxing over breakfast and I felt my muscles actually "release". It was a somewhat painful experience and I commented that my muscles really don't know how to be relaxed. They have been tense for so long!!! Anyway, it is my goal to get them used to this!
I hope you all are having a great day! I know I am!
Gotta love those Angels!!!
Love and God bless!
G
Friday, March 07, 2008
Friday, March 7, 2008 - Dreamy Alex
Unfortunately, all good things must end and this dream ended when this thought popped into my head - "how is Alex here, if he is dead?" and just as soon as that thought came to me, Alex was gone. When I told Steve about it this morning, I started crying (like now). I think the sadness comes from remembering the feeling of being with Alex. He always brought joy and laughter, smiles and amazement to my world. Oh, I miss him so much. So very, very much.
Sorry this post was such a downer. I just wanted to document this event so that I never forget.
Love and God Bless,
G
Tuesday, March 04, 2008
Tuesday, March 4, 2008 - Three Months Today
So needless to say, today has been a hard day for Steve. I on the other hand had the blessing of walking into ZG's school this morning and seeing Alex's teacher from 4 months to 2.5 years standing there. She moved to Hawaii a few months ago and I just loved seeing her beautiful face. I think we both started crying immediately. I then asked her out for a cup of tea and we spent the next hour catching up and just touching base. She is such a dear person, it was so great to hear that she is doing well and finding joy in her life. Either she or the extra cup of Joe got my blood going and I was enlivened to get moving on one of the many projects to honor Alex that I have been putting off. I think the first one will to publish the book we wrote and illustrated together. It is a wonderful tale and I can't wait to share it with the world.
Last night I spent some time on Oprah's website in the online classroom for "A New Earth" by Eckhart Tolle. It was an incredible experience but I really need to finish reading the book to get the most out of it. Anyway the first note I took was this: "What does LIFE want from me?" Oprah talked about how she prays on bended knee for God to use her. This really touched me in a very special way. Instead of figuring out what I want from LIFE, perhaps I should ask LIFE what it wants from me and see what happens. I am excited to get that going. I just have to find a few moments of silence and stillness to make that happen. Much easier said than done, as any parent can tell you!!!
Another comment that touched me last night was trying to "be like a babe" as we experience our lives. This morning ZG woke up and we went straight to the potty. She did her biz then got off and went for the TP. Then I hear, "TOILET PAPER!!" It was like she had found the most amazing, most beautiful thing on earth. Her enthusiasm over toilet paper was remarkable and I immediately thought of how it would be to experience everything that way. Can you imagine if we walked into our jobs and said "TELEPHONE!! or FAX MACHINE!!!" and awed at the incredible technology we have at our fingertips these days? I am still in awe of my new BlackBerry and even do find myself saying "Cool!!" when I figure something new out!!
So I guess that is the point of this entry. To remind ourselves that this world is full of wonder. Even those every day people, items and places can help us experience the world again for the first time. I know Alex helped me do that every day. I also know that the beauty of my boy will never fade for me and Steve. And that is just one of our blessings.
Love and God bless,
G
Thursday, February 21, 2008
Thursday, Feb. 21, 2008 - Survived Vday
Zoe came home sick last Monday and once she was well, I got sick. I had a doctor's appointment Tuesday and he gave me the Z-pack for upper respiratory gunk. I'm just starting to feel a little better. Even though ZG was better, I kept her home all week. There's been a lot of illness in town and I felt it was the best choice.
Over the weekend we had a date with a wonderful couple that really know how to have fun. It was a blast and we really enjoyed our evening with grown ups!! We need to do that more often. At the end of the evening, the discussion turned serious and the following words came flowing out of my mouth.
"Alex gave us a challenge. He challenged us to find joy and live an authentic life. He challenged us to stop wishing and start doing! If you want health then go out and get health. If you want a satisfying, rewarding career then go out and get one or make one! If you want joy then go and find it and every second of every day; in every "bad thing" that happens there is joy!" I feel these words came from Alex and not me. And I really wanted to share them with you.
So I have some news!!! Steve and I are planning on taking our honeymoon. Yes, I know we have been married for seven years but it's never too late and we REALLY need it!! We hope to go to San Francisco, do the city thing then head for Napa/Sonoma areas then end the trip on the ocean at Mendicino. I am really excited about this and have decided to work out more often to really get myself in shape. I think the endorphines are starting to kick in and the pounds finally started to come off. YEAH!!
So I have to tell you all about Monday. Well instead of spending money on a dresser for our room, STeve and I decided we would take the one in the nursery and move ZG's stuff into the closet. This meant that Alex's clothes needed to be packed up. This was such a feat for me. I found myself bawling uncontrollably and smelling his clothes. I was upset because I did not want to "pack Alex away". It felt so wrong. Linda came in and saw how upset I was and suggested that I keep some of his clothes out or in a special box in the nursery. I agreed and picked out several of Alex's favorite things - Transformers, TMNT, Lightning McQueen and of course, Spiderman t-shirts. I kept one of this footie pajamas that are red and super soft and cuddly. I kept some of the clothes that we had pics of him in too. I felt better, but needless to say, I have not touched the rest of his stuff since.
Steve and I really want to move the playroom to the current dining room. I have so much anxiety about this task after Monday's experience. I would kindly like to ask for assistance. So if you are available sometime in the next week, can you please call me and perhaps help me pack up some of these toys, etc. I really need the help!
So my therapist said, "you are doing everything right." She was talking about working with Zoe to help her cope; planning a honeymoon; and working out and dieting to get the body I want. That was so validating to hear. I really felt good when she said that to me. She also told me that Alex's death was not a punishment for me. Rather it was simply a fact of life. That Alex and God had their own timetable and death is as much a part of life as is birth and living. She told me that the immortal gods of mythology always admired mortal man because they were able to value life. The Gods would live forever no matter what so this very moment had no significance. That is our blessing. Isn't that great?!
Okay, I have to go and get ready to pick up ZG. Her therapist said yesterday that she is seeing some improvement in Zoe's self worth, so that is good news.
Love you all, God bless!
G
Wednesday, February 13, 2008
Wednesday, Feb. 13th, 2008
Besides that the new med levels are doing there job and I can function these days. I may have to stop drinking though (note the non-committal "may")!! I have always been super sensitive to my drinking since my father abused alcohol. I was feeling pretty cocky since I had attended a couple of events and handled the alcohol very well. This past Saturday though, I went to one of those "slumber parties" for women only. You know the kind, with all of the "fun" toys, lotions and potions. Well I did not eat before going and just kept pouring myself more and more wine. Needless to say, I remember bawling during my ordering session and then pretty much everything else is a blur. I did not drive, for the record. I woke up in the middle of the night with all of my clothes on and Steve was very perturbed with me. Luckily I had drank alot of water during my wine glasses so the hang over wasn't too bad. It just made me think. If I am blacking out and stumbling drunk then there is definitely some alcohol abuse going on here. I really don't know what to do about this. I think I will just bring it up in the next counseling session. If you were with me Saturday night, I apologize profusely for my behavior. As a forty-something adult, I should be better at this than I am currently. Please forgive me.
So about a week ago, Zoe's teacher called a PT conference. She told us Zoe was not doing well in the classroom. She indicated that Zoe was disconnected and uncommunicative in the class. She also was not engaging the older children (as is desired) rather she was working more with the younger kids. I could not believe my ears. I remember during the summer, Zoe's teacher telling me "Zoe is bound for greatness, she just won't accept anything else!" So our very talkative, engaged daughter was a different child away from us. We knew she could be shy, but not to this extent. ZG's play therapist said it sounded like ZG was "fear based" in the classroom and that she just needed to be held close then encouraged to explore and engage. I can't tell you how upsetting this is to me. Personally, I think she does not want to engage with the older children because the last time she became attached to an older child (her brother) he disappeared and that is very sad to her.
Steve and I are thinking about redoing the arrangement of the house. Reducing the clutter in the play room and switching it with the dining room. This way ZG will be in the same part of the house as we are in most often and more contact will be likely. We also have to reduce her TV watching. You see when Alex was sick, they watched alot of TV together. Alex could not run and play so this was a shared activity for them. Also, towards the end of Alex's life, most of our attention was "used up" by his care. Fortunately, our dear friends and family made a concerted effort to help out with ZG. Nevertheless, she did spend alot of time in front of the TV. So that will be changing soon.
Okay, I just wanted to put these things out there. I will write soon, but until then please take the time to tell the ones you love how you feel! Tomorrow is a great opportunity to do so!
Love and hugs! God bless!
G
Saturday, February 02, 2008
February 2, 2008 - Groundhog day
She also wants me to get on a schedule. I have been trying so hard not to take on any "projects" that would divert me from my healing. She explained that this was not a good strategy either. That I need a project, preferably one that will honor Alex. I have several ideas, so we'll see where they lead.
STeve and I are really having a very, very hard time. We find ourselves needing comfort that the other person is just not able to offer. It is a very lonely feeling. We have gone out the last two Friday nights and said alot of things that needed to be said. I am hopeful that we will survive "the most divisive hardship a marriage will ever face" but if we don't; we are dedicated to giving it all we can.
Zoe is doing okay. In her last play therapy session she expressed a need for a cohesive family moving in the same direction (can you say WOW!!). She also expressed some anxiety as well as did a lot of Mom nurturing play. She is very worried about me. This stuff is just amazing. Children never cease to be awe-inspiring, do they?
So we had a girls' night out this past week. I actually had a very good time and thoroughly enjoyed my time with some incredible women! We call ourselves the "Dazzling Dames" and wear tiaras during all of our gatherings. If you have never tried wearing a tiara during your day, I highly recommend it! It really does change how you walk and feel about yourself. So go and celebrate your inner Princess! Then tell me about it, please! I am planning another event for February, so if you see a bunch of women wearing tiaras come by and say "hello". My counselor said I have to do more of this kind of thing. I told her I felt bad not spending time with ZG and Steve. She explained that right now I need to take time for myself so I can be a good wife and mother. So I guess once again, I need to call on my support system.
Steve and I have also joined the local gym. I love doing aerobic classes and am very much looking forward to having endorphines coursing through my body. Steve also found a yoga class nearby that we started last Saturday and will continue to do together for 5 more weeks. I miss yoga but left the first class in a horrible mood. The instructor really pissed me off somehow and I was just plain old MAD! Luckily, she was not going to be our instructor for the remaining sessions. I have NEVER left yoga in anything resembling a sour mood, so this really threw me for a loop. Nevertheless, I am going back in an hour and very hopeful that I will leave in a better mood!!
Okay, well that is the update. The tears are still there every day. At least now I can start to imagine that one day I will be able to anticipate joy in my life. That is HUGE!!!
God bless!
G