Hi Everyone, well yesterday was a very good day for Alex. The two days prior were not so good. Alex was very tired, took alot of oxygen and yet still had low energy. We think this was due to the increase in Medazolam over the weekend. Nonetheless, yesterday was a different story. The birthday party at Alex's favorite breakfast restaurant probably helped boost his spirits. On Tuesday, we made arrangements with the restaurant's owner and the evite went out. Alex had a five pancake cake with whipped cream frosting to celebrate the event. All of the kids were in costumes and Steve and I were dressed up also. I was Lady Guenevere and Steve was Lord of the Torridors (or something like that).
Alex got this incredible talking faux parrot that is still amazing us! And today he opened his Pirate kit and turned into a real pirate. Later today we hope to make it out to Build-A-Bear and use the gift card he also received yesterday. I can't say enough thanks to everyone that came on such short notice. Your support made it a very special party.
So Sunday is Alex's real birthday. He wants the house decorated again and since some dear friends are in town from Seattle and Santa Cruz; we are going to keep this party low key. Wish us luck!
So last night as Alex was fading into sleep he said the following:
"Having fun with friends; sleeping with you and Zoe and Grace (I'm pretty sure he meant dad) that is what is MOST important. Oh and watching my shows in the morning."
I just thought that was too sweet.
Okay, day going on, gotta go.
Love and God bless!
G
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7 comments:
Gwen,
The pancake party sounded like sooo much fun--I wish we could have gone, but we were dealing with a child with a (luckily) 24-hour flu that we didn't want to spread around.
We will be sending birthday wishes to Alex this weekend--have fun celebrating with your friends!
~Annie
A pirate with a talking parrot and a big, birthday grin - a heart-warming cause for celebration AND a pretty cool photo oportunity! HAPPY BIRTHDAY, ALEX!
It is so wonderful to hear Alex and family and friends had a wonderful birthday celebration! Wishing you all the best and sending my love and complete admiration
-joy
We had fun too. Thanks for giving us an opportunity to see Alex. It was fun, and we loved spending the time with you and Steve, too. Best to you all for a very special birthday!
Susan
I couldn't agree more with Alex about the most important things. I wish that there was an easier way for us to learn these lessons.
Please take care of yourselves and spend plenty of time snuggling with that kid.
Happy Birthday Alex!
Love from the Miles/Taylor family!
Happy Birthday Alex.
Our love always,
'Uncle' Mark (&Makkai)
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