Well, Alex is home and seems to be more relaxed. He is on a "dying drug" that is an anti-nausea, anti-seizure and anti-anxiety medication. It kinda makes him stoned. Yesterday morning he said to us with glossy eyes "I am soooo happy." Alex has had several friends over and really enjoyed sharing his Spiderman Welcome Home cake with them all. They loved the blue tongues and lips!!
So one good thing that has come out of the past ten days is that Alex has been given permission to take "real baths". He had two in the hospital and we are still waiting to take one with little sister soon. I want to get him a bathtub handle to help him feel more secure. You should seem him. It is such a simple pleasure and he loves it!
So I just wanted to share some good news. Alex ate pretty well yesterday and we pray that that continues. Thank you all for your comments and love. We love you too.
G
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4 comments:
I am glad he is home with family to be hugged, kissed, and loved.
My heart goes out to you.
I am so happy he is finding joy in these simple things! There is nothing better than an Alexander smile! Praying that many more smiles will come!
Know that you are in my thoughts always!
Heather
It was so nice to see Alex feeling more relaxed and eating. We miss you today. Our downstairs plumbing decided to be extremely leaky today so I hope we can visit tomorrow if not we'll definitely see you Sunday.
love,
Tina
Thanks for the update. So happy to hear that Alex is comfortable and that you're together as a family.
Sending all our love to the four of you.
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